Just before his 2nd birthday, Charlie was diagnosed with a debilitating genetic disease so rare that it doesn’t even have a name - yet. With less than 300 known cases worldwide this incredibly rare disease is referred to as SLC6A1, a genetic disorder that causes epilepsy, autism, movement disorder, ADHD and global developmental delays.

 

After years of struggle and nonstop fundraising, a cure is finally on the horizon using gene therapy. We are now just 1 MILLION DOLLARS away from making this a reality. Once we meet this fundraising goal, we are within reach of a clinical trial which will offer a lifesaving treatment to those suffering from SLC6A1. Last year we donated over $4,000 to a Cure For Charlie, let's donate even more this year!

 

Please follow our journey and consider a donation to help Charlie and many other children battling SLC6A1 have A BETTER CHANCE AT LIFE!